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All Fall Down
for M.E, 2.30 for 3PM, Sunday 12th May, Westminster
Please note that everyone taking part in this event is responsible
for their own safety and well being; the organisers do not take
police have been informed and since this is public land they have
assured us we have the right to demonstrate here, they will support
us and that there is no risk of arrest – unless someone does
anything that is likely to endanger the health & safety of others.
we need to show that this is not enjoyable: the person with ME has
to do this in order to survive/exist. We suggest you bring a
black sheet/cloth/bin bag to cover your body to signify a living
death. Please bring props such as eyemasks, sunglasses, ear
defenders, possibly feeding tubes etc to convey:
to the point of collapse after minimal activity; the nerve, joint
and muscle pain unresponsive to painkillers; the physical weakness;
the cognitive dysfunction with thinking & memory problems; the
inability to tolerate light and noise; the faintness & dizziness
particularly when standing; nausea; rest or sleep bringing little or
no relief; plus many other symptoms. This is what our loved ones
have to suffer, day after day, after month, after year, with no end
in sight. A living death.
Since Old Palace
Yard is cobbled, you may also wish to bring something to lie on,
but please make it as ‘dead-looking’ as possible ie no bright
if you wish but think about who may hold them while you are lying on
the ground. We plan to have those with banners at the back, with
those collapsed on the ground in front of them. We plan to film &
photograph the event from an angle that gives maximum impact to the
sight of those collapsed on the ground, with the Houses of
Parliament in the background.
straplines: M.E – a living death, it could
be YOU or your child. Biomedical Research urgent.
You may want to
wear a sash or sign saying, for example: My son, M.E 6 years; my
wife M.E 20 years; my Dad M.E …; my sister….and so on.
Our aims are: to
raise awareness among the public and government about how severe &
long-lasting M.E can be; how common it is; how it can strike
healthy, happy individuals out of the blue, particularly our
children and young people; and that we
urgently need far more investment in biomedical research to
discover cause(s), effective treatments and hopefully a cure –
before it’s too late.
We also need far
better training for doctors etc on the latest knowledge about M.E.
demonstration, as well as depicting the severity of the illness, we
will be honouring those who have actually died from M.E. and also
the courage of all those who continue to fight on in the hope of a
For Further Information about M.E. -
please watch &/ or send on to others:
Fatigue is to
this illness what a match is to an atomic bomb
Mind the Abyss
A brilliant new short animation which vividly evokes
the first 6 months of this young man’s illness. The first of three.
The World of
(6 mins) The photo on the Event poster is of the courageous young
woman in this video.
Voices from the
(4 mins) . The full film (just over 1 hour) is available via the
website below. It is a profoundly moving and shocking portrayal of
the abuse of children & adults with M.E by medical ‘professionals’.
Anthony Komaroff (Harvard Medical School) presentation on The
Biology of ME/CFS.
Very good viewing for anyone who doubts the scientific evidence for
ME/CFS as a real, serious neurological condition.
(Part 1, 25 mins)
(Part 2, 22 mins)
Dr John Chia
talking to Llewellyn King of The White House Chronicles:
Chia: In England this is not
recognised as a …. real disease so there’s really not much funding.
It’s really interesting what’s happened in England where the
psychiatrists have claimed the disease …. I get more sad,
terrible correspondence from patients from England than from
anywhere in the world. Great anger, great pain. And yet the
National Health Service …. being a monopoly, has arguably decided on
the cheapest ‘solution’ which is psychiatry, except that it isn’t a
solution and doesn’t work.
Chia: You said the right word:
it’s the cheapest way to deal with a difficult disease: “It’s all in
the mind, there’s nothing I can do for you” - it doesn’t cost any
The problem is
this is a very complicated disease. This disease, in my humble
opinion, is as difficult as HIV. The only difference is that AIDS
patients died. This disease usually doesn’t kill a patient.
Rarely, people do die from this illness. But this is a very
serious disease: it can be life-long, people are totally debilitated
and they cannot really function ever, although they wish to.
International Consensus Criteria (ICC)
For full list of symptoms:
the UK Medical Research Council website:
There is now preliminary evidence supporting the view that
inflammatory mechanisms in the brain and spinal cord may underlie
the pathophysiology of some severe disease CFS/ME phenotypes.
The UK Medical
Research Council has recently given £1.65 million towards biomedical
research, a UK ME/CFS Research Collaborative is about to be
launched, and there is much biomedical research now taking place in
the U.S, Australia and many other countries.
BUT WE NEED
FAR, FAR MORE AWARENESS & FUNDING
to give our loved ones a chance of living what is left of their
lives – before it’s too late.
intimidated by ignorance. Stand up (or lie down!), speak out and
let everybody hear our voice on behalf of our loved ones who are
hidden away and seldom seen or heard. Educate others at every
All Fall Down
is a cross-charity event with no particular charity affiliations,
although we particularly support those which promote and fund